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Privacy Policy

LAST UPDATED: September, 2009

National Kidney Center Privacy Policy

NationalKidneyCenter.org (“National Kidney Center,” “we,” “us“) is concerned about online privacy issues and wants you to be familiar with how we collect, use and disclose your Personally Identifiable Information (as defined below).  This Privacy Policy (the “Policy“) describes our practices in connection with Personally Identifiable Information that we collect through our web site located at
http://www.NationalKidneyCenter.org (the “Site,” together with any successor site(s) and any services provided on the Site or the successor site(s), the “Service“).  This Policy does not govern our collection of information through any web site, or by any other means, other than through the Service, nor does it govern the collection of information by third parties.  You must provide true, accurate and complete registration information to be a member of the Service (a “Member“).

By using any portion of the Service, you agree to the terms and conditions of this Policy.  If you do not agree to the terms and conditions of this Policy, please do not use the Service.  We reserve the right to change this Policy without prior notice.  You can determine when this Policy was last revised by referring to the “LAST UPDATED” legend at the top of this page.  Any changes to our Policy will become effective upon our posting of the revised Policy on the Service.  Use of the Service following such changes constitutes your acceptance of the revised Policy then in effect.

The Service is controlled and operated by the National Kidney Center from the United States, and is not intended to subject the National Kidney Center to the laws or jurisdiction of any state, country or territory other than that of the United States.

Note Regarding HIPAA: You understand and acknowledge that the National Kidney Center is not a covered entity within the meaning of the Health Insurance Portability and Accountability Act of 1996 and its related regulations set forth in Pars 160, 162, and 164 of Title 45 of the Code of Federal Regulations (collectively, “HIPAA“) and is not acting on behalf of a covered entity in its capacity as the operator of the Service and that any information you submit to the National Kidney Center through the Service that would otherwise be regarded as protected health information for purposes of HIPAA will not be subject to the limitations on the use and disclosure of such information by covered entities under HIPAA.

Note Regarding the Use of the Service by Children: The Service is not directed to individuals under the age of thirteen (13), and we request that such individuals do not provide Personally Identifiable Information through the Service.

1. What Types of Information Does The National Kidney Center Collect From Me?

The National Kidney Center gathers two basic types of information through the Service: “Personally Identifiable Information” (or “PII“) and “Non-Personally Identifiable Information” (or “Non-PII“).  Personally Identifiable Information is information that identifies you as an individual.  Non-Personally Identifiable Information is aggregated information, demographic information, and any other information that does not reveal your specific identity.

  1. Personally Identifiable Information.  You do not have to provide PII to use the Service.  However, in order for you to take advantage of particular opportunities provided through the Service (for example, to view certain areas of the Service), we may require that you furnish PII and register as a Member.  We collect PII from you through the Service, such as your user name and e-mail address, only when you voluntarily provide it to us (for example, when you register to become a Member). Please note that we use a third-party service, PayPal, to collect donations made through the Site.  If you wish to make a donation through the Site, you will be directed to a web page hosted by PayPal (or PayPal’s service providers) and not by the National Kidney Center (the “PayPal Page“).  Any PII that you provide through the PayPal page will be collected by PayPal and not by the National Kidney Center, and will be subject to PayPal’s privacy policy, not this Policy.  The National Kidney Center has no control over, and shall not be responsible for, PayPal’s use of information collected through the PayPal Page.  PLEASE NOTE THAT THIS PRIVACY POLICY DOES NOT ADDRESS THE COLLECTION AND USE OF INFORMATION THROUGH THE PAYPAL PAGE OR THE PRIVACY OR INFORMATION PRACTICES OF PAYPAL.
  2. Non-Personally Identifiable Information.  When you visit and interact with the Service, the National Kidney Center and third parties with whom the National Kidney Center has contracted to provide services to the National Kidney Center may collect Non-PII (for example, a catalog of the Service pages you visited).  Non-PII is generally collected through the Service from five different sources: server log files, environmental variables, cookies, pixel tags and other similar technologies and information that you voluntarily provide.
  1. Server Log Files.  Your Internet Protocol (IP) address is a number that is automatically assigned to the computer that you are using by your Internet Service Provider (ISP).  This number is identified and logged automatically in our server log files whenever you visit the Service, along with the time(s) of your visit(s) and the page(s) that you visited.  We use your IP address, and the IP addresses of all users, for purposes such as calculating Service usage levels, helping diagnose problems with the Service’s servers, and administering the Service.  Collecting IP addresses is standard practice on the Internet and is done automatically by many web sites.
  2. Environmental Variables.  We and our service providers may also collect certain environmental variables, such as your MAC address, computer type (Windows or Macintosh), screen resolution, OS version, Internet browser, and Internet browser version.  These environmental variables are collected by most browsers, and can be used to optimize your experience on the Service.
  3. Cookies.  We and our service providers may use “cookies” on the Service.  Cookies are data that a web server transfers to an individual’s computer for recordkeeping purposes.  Cookies are an industry standard used by most web sites, and can facilitate users’ ongoing access to and use of a particular web site; cookies do not cause damage to your computer systems or files.  If you do not want information collected through the use of cookies, there is a simple procedure in most browsers that allows you to automatically decline cookies, or to be given the choice of declining or accepting the transfer of a particular cookie, or cookies from a particular web site, to your computer.
  4. Pixel Tags.  We and our service providers may also use so-called “pixel tags,” “web beacons,” “clear GIFs” or similar means (collectively, “Pixel Tags“) in connection with some Service pages and HTML-formatted e-mail messages to, among other things, compile aggregate statistics about Service usage and response rates.  A Pixel Tag is an electronic image, often a single pixel (1×1), that is ordinarily not visible to Service visitors and may be associated with Cookies on the visitors’ hard drives.  Pixel Tags allow us to count users who have visited certain pages of the Service, to deliver branded services, and to help determine the effectiveness of promtional or advertising campaigns.  When used in HTML-formatted e-mail messages, Pixel Tags can tell the sender whether and when the e-mail has been opened.
  5. Information That You Voluntarily Provide.  The National Kidney Center also collects Non-PII (e.g., your gender, time zone, health focus, etc.) when you voluntarily provide such information to us.  When such information is not combined with any PII, such information is considered to be Non-PII, as it does not personally identify you or any other user.  Additionally, we may aggregate PII in a manner such that the end-product does not personally identify you or any other user of the Service, for example, by using PII to calculate the percentage of our users who have a particular telephone area code.  Such aggregate information is considered Non-PII for purposes of this Policy.

2. How Does The National Kidney Center Use Information Collected From Me?

  1. Personally Identifiable Information.  We may use your PII in the following ways:
    1. Fulfillment of Requests.  The National Kidney Center may use your PII to fulfill the purpose for which such PII was provided (e.g., to customize the content and/or layout of page for each visitor).
    2. Administrative Communications.  From time to time, in our sole discretion, we may use your PII to send to you important information regarding the Service, or changes to our terms, conditions, and policies.  Because this information may be important to your use of the Service, you may not opt-out of receiving such communications.
    3. Other Communications.  If you expressly opt-in, we may use your PII to inform you of products and services that we believe may be of interest to you.  If you subsequently change your mind and would prefer that we do not send marketing-related e-mails to you, please see Section 4.c (“Opt-Out”) below.
    4. E-mails to Friends.  We may provide functionality to permit you to send messages regarding Site-related content to a friend through the Site.  If you wish to use this feature, you may provide us with your friend’s e-mail address so that we can facilitate your sending of such message to your friend.  We do not use your friend’s PII for any other purpose, unless otherwise disclosed to you at the time you provide such PII to us.
    5. Promotions.  We may operate sweepstakes, contests and similar promotions (collectively, “Promotions“) through the Site.  We typically ask you for certain PII when you enter and, if applicable, win a prize.  You should carefully review the rules, if any, of each Promotion in which you participate through the Site, as they may contain additional important information about the National Kidney Center’s use of your PII.  To the extent that the terms and conditions of such rules concerning the treatment of your PII conflict with this Policy, the terms and conditions of such rules shall control.
    6. Internal Business Purposes.  We may also use your PII for our internal business purposes, such as data analysis, audits, enhancing our Service, improving our services and identifying usage trends.
  2. Non-Personally Identifiable Information.  Because Non-PII does not personally identify you, we may use such information for any purpose.  In addition, we reserve the right to share such Non-PII, which does not personally identify you with third parties for any purpose.  For example, we may allow you to participate in anonymous, voluntary surveys through the Service, and we may share the results of such surveys with third parties in a non-personally identifiable manner. In some instances, we may combine Non-PII with PII (such as embedding e-mail addresses in cookies).  If we do combine any Non-PII with PII, the combined information will be treated by us as PII hereunder as long as it is so combined (see Section 2.a above).

3. How Is Personally Identifiable Information Collected on the Service Disclosed?

  1. Third Party Service Providers.  We work with third parties who provide services including but not limited to data analysis, website hosting, other similar services and other services of an administrative nature.  We reserve the right to share your PII with such third parties for the purpose of enabling these third parties to provide such services.
  2. Third Party Communications.  If you expressly opt-in, we may share your PII with third parties to allow them to contact you regarding products, programs, services and promotions that they believe may be of interest to you.  If you subsequently change your mind and would prefer that we do not share your information with such third parties for such third parties’ marketing purposes, please see Section 4.c (“Opt-Out”) below.
  3. Forums and Message Boards.  As a service to our users, the National Kidney Center may offer message boards, blogs, online discussions and other public forums (each a “Forum“) where users with similar interests or health conditions can share information, post questions and support one another.  We seek to allow you to determine whether you wish your personal blog to be private, available to only a select group of people or publicly available.  Please note that any information (including PII) that you reveal in a Forum is by design open to the public and is not a private, secure service.  We urge you to exercise discretion and think carefully before disclosing any PII or any other information in any Forum.  What you have written and posted to the Forum may be seen, disclosed to or collected by third parties and may be used by others in ways we are unable to control or predict, including to contact you for unauthorized purposes.  As with any public forum on any site, this information may also appear in third-party search engines like Google, Yahoo, MSN, etc.  WE ARE NOT RESPONSIBLE FOR THE USE OF ANY PII OR PERSONAL HEALTH INFORMATION YOU VOLUNTARILY DISCLOSE THROUGH A FORUM.
  4. Profiles.  You may post certain information and materials on your “profile page” (your “Profile“).  Please note that your Profile, including all PII that you make available on your Profile, is viewable by other users.  We urge you to exercise discretion and caution when deciding to disclose your PII, or any other information, in your Profile.  WE ARE NOT RESPONSIBLE FOR THE USE OF ANY PII OR PERSONAL HEALTH INFORMATION YOU VOLUNTARILY DISCLOSE THROUGH YOUR PROFILE.
  5. E-mails to Friends.  Please note that any PII you provide in connection with sending messages regarding Site-related content to a friend through the Site, such as your name and your e-mail address, will, of course, be disclosed to your friend.
  6. Promotions.  We reserve the right to share the PII you provide in connection with Promotions with third parties sponsors of such Promotions (irrespective of whether such Promotions are hosted by us), or otherwise in accordance with the rules applicable to such Promotion.  You should carefully review the rules, if any, of each Promotion in which you participate through the Site, as they may contain additional important information about a sponsor’s or other third parties’ use of your PII.  To the extent that the terms and conditions of such rules concerning the treatment of your PII conflict with this Policy, the terms and conditions of such rules shall control.
  7. Assignment.  We reserve the right to transfer any and all information that we collect from Service users to a third party in the event of any reorganization, merger, sale, joint venture, assignment, transfer or other disposition of all or any portion of the National Kidney Center’s business, assets or stock (including without limitation in connection with any bankruptcy or similar proceedings).
  8. Law enforcement; emergencies; compliance.  Notwithstanding any other provision of this Policy to the contrary, we reserve the right to disclose your PII to others as we believe to be appropriate (a) under applicable law; (b) to comply with legal process (c) to respond to governmental requests; (d) to enforce our Terms of Use; (e) to protect our operations; (f) to protect the rights, privacy, safety or property of the National Kidney Center, you or others; and (g) to permit us to pursue available remedies or limit the damages that we may sustain.

4. Other Important Notices Regarding Our Privacy Practices.

  1. Third Party Links.  The Service may contain links to third party web sites.  These linked sites are not under the National Kidney Center’s control and we are not responsible for the privacy practices or the contents of any such linked site, or any link contained in any linked site.  We provide such links only as a convenience, and the inclusion of a link on the Service does not imply endorsement of the linked site by the National Kidney Center.  If you provide any PII through any such third party web site, your transaction will occur on such third party’s web site (not the Service) and the PII you provide will be collected by, and controlled by the privacy policy of, that third party.  We recommend that you familiarize yourself with the privacy policies and practices of any such third parties.  PLEASE NOTE THAT THIS POLICY DOES NOT ADDRESS THE PRIVACY OR INFORMATION PRACTICES OF ANY THIRD PARTIES.
  2. Security.  We have security measures and tools, such as firewalls, in place to help protect against the loss, misuse and alteration of the information under our control.  Unfortunately, no data transmission over the Internet or data storage system can be guaranteed to be 100% secure.  As a result, although we strive to protect your PII, we cannot ensure or warrant the security of any information you transmit to us through or in connection with the Service or that is stored by us.  If you have reason to believe that your interaction with us is no longer secure (for example, if you feel that the security of any account you might have with us has been compromised), you must immediately notify us of the problem by contacting us in accordance with Section 4.g (“Contacting Us,”) below (note that if you choose to notify us via physical mail, this will delay the time it takes for us to respond to the problem).
  3. Opt-Out.
    1. As noted above, if you expressly opt-in, we may send you marketing-related e-mail messages.  If you do not want to receive such marketing-related e-mails from us in the future, you may opt-out of receiving such marketing-related e-mails by updating your profile to discontinue all marketing emails from us.
    2. Additionally, as noted above, if you expressly opt-in, we may share your PII with third-parties for their marketing purposes.  If, going forward, you do not want us to share your e-mail address with third parties for such third parties’ marketing purposes, you may opt-out of such sharing by updating your profile to discontinue all third party marketing emails.

    Please note, however, that if you opt-out as described above, such opt-out will apply only with respect to the PII associated with the particular e-mail address that you use to send us your opt-out request.  If you have more than one e-mail address registered with us, please opt-out using each e-mail address that you have registered with us.

    We will endeavor to comply with your request as soon as reasonably practicable.  Please note that if you opt-out as described above, we will not be able to remove your PII from the databases of third parties with which we have already shared your PII (i.e., to which we have already provided your PII as of the date that we implement your opt-out request).  If you wish to cease receiving marketing-related e-mails from such third parties, please contact such third parties directly or utilize any opt-out mechanisms set forth in their respective privacy policies or marketing-related e-mails.

  4. Third Party Advertisers.  We may use third party advertisement-serving companies (“Advertisers“) to serve advertisements on the Service.  Please be advised that such Advertisers may use cookies, Pixel Tags and other technologies to, among other things, enable such Advertisers to monitor which ads have been served to your browser and which Service pages you were viewing when such ads were delivered.  If you would like more information about these practices or your choices regarding the collection and use of this information by Advertisers, please visit:
    http://www.networkadvertising.org/.  PLEASE NOTE THAT THIS POLICY DOES NOT COVER THE COLLECTION AND USE OF INFORMATION BY ADVERTISERS.
  5. Changing Your PII.  If you would like to review, correct or update PII that you have previously provided to us through the Service, you may do so by updating your profile.
  6. Please note that we may need to retain certain information for recordkeeping purposes, and there may also be residual information that will remain within our databases and other records, which will not be removed therefrom.  We also reserve the right, from time to time, to re-contact former users of the Service.  Finally, we are not responsible for removing information from the databases of third parties with whom we have already shared your PII.

  7. Jurisdictional Issues.  The National Kidney Center does not represent or warrant that the Service, or any part thereof, is appropriate or available for use in any particular jurisdiction.  Those who choose to access the Service do so on their own initiative and at their own risk, and are responsible for complying with all local laws, rules and regulations.  We may limit the Service’s availability, in whole or in part, to any person, geographic area or jurisdiction we choose, at any time and in our sole discretion.  By using the Service and submitting any Personally Identifiable Information, you acknowledge that the Service is subject to United States law, consent to the transfer of Personally Identifiable Information to the United States.
  8. Contacting Us.  If you have any questions regarding this Policy, please contact us by e-mail at
    contact@NationalKidneyCenter.org.  Please note that e-mail communications will not necessarily be secure; accordingly you should not include credit card information or other sensitive information in your e-mail correspondence with us.

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